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Prevent Blindness Resources: Retinopathy of Prematurity

Posted 2 days ago by Lori Kelley

Retinopathy of Prematurity (ROP) is a condition caused by abnormal development of retinal blood vessels, occurring as a complication of preterm birth and/or low birth weight. ROP may lead to partial or complete vision loss if the condition is severe and the retina detaches. Effective screening, timely treatment, and ongoing eye care are essential for preventing ROP- associated vision loss. ROP is a leading cause of lifelong visual impairment.

 

Prevent Blindness offers a library of FREE resources on Retinopathy of Prematurity. These resources, part of the Prevent Blindness ROP Education and Support Program, were created to educate and support families of children with ROP and increase awareness about ROP in the general public. This content will be highlighted by Prevent Blindness throughout the third annual ROP Awareness Week, Feb. 23 to March 1, 2026. The Free resources include:

 

 

  • Family-friendly ROP fact sheets in English and Spanish:
    • What is Retinopathy of Prematurity (ROP)?
    • How is ROP Diagnosed and Treated?
    • What Do I Need to Know About My Child’s ROP and Lifelong Vision Health?
  • Free video series in English and Spanish featuring medical experts and parents of children with ROP sharing:
    • The process of the ROP eye exam, why it is important, and how parents can prepare.
    • Importance of adhering to follow-up treatment plans after leaving the Neonatal Intensive Care Unit (NICU).
    • Experiences and helpful suggestions on accessing early intervention programs
    • Insights for parents on caring for a baby with ROP and navigating the healthcare system for their child.
    • Advice on seeing surplus among children with ROP and advocating for them to reach their fullest potential.
  • Several social media graphics to post.

 

For more information on ROP, contact Prevent Blindness at info@PreventBlindness.org.

 

This information was developed in partnership with Hand to Hold, National Coalition for Infant Health, and the SPAN Parent Advocacy Network. This material was made possible by funding from Regeneron Pharmaceuticals, Inc.